Child at centre of heart transplant drama a year ago apparently taken off life-support

A seriously ill child who defied death a year ago after her parents had offered her heart to another infant has apparently been taken off life-support in a Toronto hospital.

Kaylee Vitelli had been on a respirator after experiencing severe seizures on Tuesday evening.

A spokesman says Kaylee has been taken off the respirator and the family is “distraught.”

The Hospital for Sick Children did not respond to a request for comment.

Kaylee captured national attention last April when her parents — fearing their first-born would soon die of a rare genetic condition — offered her heart for transplant.

Against all odds, Kaylee rallied and became well enough to go home a few weeks later.

Kaylee suffers from Joubert syndrome, a malformation of the brain and brain stem accompanied by frequently interrupted breathing.

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